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The Tuberous Sclerosis Alliance

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Nancy L. Taylor, CEO of the Tuberous Sclerosis Alliance (TS Alliance), says, "We are pleased to be a partner with Springboard Consulting and have appreciated the skills that Nadine Vogel brings to resources for those with disabilities."

What is the TS Alliance?
The Tuberous Sclerosis Alliance (TS Alliance) is the only national voluntary not-for-profit organization dedicated to finding a cure for tuberous sclerosis complex (TSC) while improving the lives of those affected.

The TS Alliance is committed to promoting and sponsoring medical research related to the diagnosis, cause, management, and cure of TSC and ensuring that affected individuals and families have access to appropriate medical services, support services, and resource information. It is involved in the development of public and professional educational programs aimed at increasing awareness of TSC and prompting early diagnosis and effective treatment. The TS Alliance also provides support groups and other services; promotes patient legislation beneficial to affected individuals; and conducts international symposia on tuberous sclerosis complex.

Additional services include:

Website with free information, including TS Alliance publications, fact sheets, medical opinions, etc.
Online discussion groups
Physician referral
Matching program

Free access to licensed clinical social worker
Community Alliances - 25 “chapters” across the United States that provide localized support and fundraising
Research grants
Outreach and awareness campaigns
Support groups
Government advocacy
Regional and national constituent and scientific conferences

For more information, visit www.tsalliance.org, email info@tsalliance.org or call (800) 225-6872.